Even before I got officially diagnosed with endometriosis, it was already lonely. None of my family or friends had the kind of terrible menstrual periods I got. Everyone just accepted that this was my fate and lived their own less painful lives.
After my diagnosis, I knew that I never wanted anyone to feel the kind of loneliness and desperation I felt at various times. I have come a long way since my diagnosis. I know that there is a lot of information out there, and this can feel overwhelming. In fact, see this list of Endometriosis myths. This is why I believe no one should walk this road alone.
Even though there is no cure for endometriosis, I don’t want you to feel hopeless. There are many ways to ensure that you live a fulfilled, wholesome and happy life even with endometriosis.
It will require some work on your part. You will have to make some hard choices regarding your lifestyle, diet and exercise. And it will take some time. No one except you can determine how long it will take before you go from always in bed and always in pain TO being able to live well despite the pain and even helping others. But I promise you that you will not be alone. We can do this together.
P.S. I do not believe that we should ignore our medical professionals’ advice, and I know that some of the lifestyle changes we will make are to supplement our medical care. I am not a healthcare professional but I will share what has worked and still works for me.